Webcasts

Watch this Webcast for Families Affected by IBD.

Family Education Days

The Johns Hopkins Pediatric IBD Center hosts educational days that are both fun for the family and informative. Prior events have been held at Oriole Park at Camden Yards and at the National Aquarium in Baltimore. View this slideshow of highlights from previous IBD days.

Materials

Living with IBD Brochure This brochure provides helpful information for children living with IBD and their families. Click on the image to left to access a PDF of the brochure.

Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving In this book, an expert team of pediatric gastroenterologists, including division chief Maria Oliva-Hemker, M.D., explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. You may purchase from Amazon.com.

Crohn’s & Colitis Foundation of America, Inc (CCFA)

CCFA is a non-profit, volunteer organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis.

Additional information can be found at the CCFA website http://www.ccfa.org/ or by calling 800-932-2423

The Maryland and South Delaware Chapter can provide additional resources for local families

http://www.ccfa.org/chapters/md-southde/  800-618-5583

The North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

The North American society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) is a medical society consisting of more than 1400 pediatric gastroenterologists from the United States, Canada and Mexico. NASPGHAN strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research and education. Families can find pediatric gastroenterologists in their area using the naspghan website

http://www.naspghan.org/

Children’s Digestive Health and Nutrition Foundation (CDHNF)

CDHNF is associated with NASPGHAN and was founded to improve the treatment and management of gastrointestinal, hepatobiliary, pancreatic and nutritional disorders in children. Information about IBD can be found on their website http://cdhnf.org/wmspage.cfm?parm1=51

IBD University

IBD U is a website to help adolescents and young adults transition from pediatric IBD care to adult IBD care

http://www.ibdu.org/