Your child, as a patient at Hopkins Children’s, is entitled to certain rights. We want you to be well informed of these rights so you can more freely participate in treatment choices, and communicate openly with your healthcare team.
A Bill of Rights for Children
As a patient at the Johns Hopkins Children's Center, you and your family have the right to:
· Respect and Personal Dignity
You are important, and we want to get to know you. But we will not talk about you in your room or outside your door unless you know what is happening.
· Compassionate Care
Working with you and your family, we will provide care that makes you feel safe and comfortable. We will provide a place for a member of your family to spend the night or be near you.
· Care that Supports Growth
We will provide you with time for activities to express yourself, and for play and rest.
· Clear Information
Ask about what is happening to you and why. We will speak to you in ways you can understand, and someone in your family can be with you when people in the hospital are explaining things to you.
· High-Quality Care
You have the right to know all of the people taking care of you. You and your family can meet with them to plan what is best for you.
Your child has the right to:
- Receive considerate, respectful and compassionate care in a safe setting regardless of his or her age, gender, race, national origin, religion, sexual orientation or disabilities.
- Be addressed by his or her proper name and to be told the names of the doctors, nurses and other healthcare team members involved in care.
- Be informed by his or her doctors about the diagnosis, as well as the benefits and risks of each treatment and expected outcome. The child through his family has the right to give written informed consent before any non-emergency procedure or treatment begins.
- Be informed about pain and pain relief measures and to actively participate in his or her pain management plan.
- Be free from restraints and seclusion in any form that is not medically required.
- Expect full consideration of his or her privacy and confidentiality in care discussions, examinations and treatments. The presence of a chaperone during any type of examination may be requested.
- Actively participate in decisions regarding his or her medical care, including the right to refuse treatment to the extent permitted by law and to be advised of the medical consequences of refusal. If the child/family chooses to leave the hospital against the advice of your doctor, the hospital and doctors will not be responsible for any medical consequences that may occur.
- Agree to, or refuse to, take part in medical research studies. You may at any time withdraw your child from a study and it will not affect usual medical care.
- Sign language or foreign language interpreter services. We will provide an interpreter as needed.
- Make an advance directive, such as a living will, and appoint someone to make healthcare decisions. We can provide families information and assistance to complete an advance directive.
- Be involved in discharge planning. Prior to your child’s discharge from the hospital, you can expect to receive information about follow-up care that may be needed after discharge.
- Review or obtain a copy of the medical record. All communications and records pertaining to care are confidential unless disclosure is permitted by law.
- Receive detailed information about hospital and physician charges.
- Voice concerns about the care or services. If you have a complaint, you may talk with your doctor, charge nurse or nurse manager. You may also contact a patient representative to assist you with your concerns by calling 410-955-2273. If your concern is not resolved to your satisfaction, you have the right to request a review by the Maryland Department of Health & Hygiene, Office of Health Care Quality, Hospital Complaint Unit, Spring Grove Hospital Center, Bland Bryant Building, Catonsville, Maryland 21228; 410-402-8016.
- Discuss an ethical issue related to his or her care. A member of the Ethics Service is available on beeper at all times. To reach a member, dial 36104. After three beeps, enter your phone number and then the pound sign (#). An Ethics Service member will return your call.
- Contact a hospital chaplain to assist with religious and spiritual needs or to contact your own clergy. A chaplain can be reached at 410-955-5842 from 8 a.m. to 5 p.m. weekdays. At other times, please ask your nurse to contact the chaplain on call.